Nose & More Update

Well, not great news, but we're getting help. Zane's nose was worse this morning. Dr. S is disappointed in the various complications and we're looking at a couple different issues right now. They're pretty sure the nose is definitely infected, but not food related. We did a nose swab that will come back on Monday, but because it is so swollen, red and painful, we started Zane on antibiotics for fear that if we didn't get it under control he would be in surgery Monday morning to drain an abscess. Zane is also scheduled for a sedated MRI because they need to see what is going on in there that could be causing this repeated infection.... No one said it out loud, but it sounded like they were thinking possible foreign object???? One step at a time, aye?! We're starting the antibiotics, getting the MRI and then next steps will be determined.

The second concern is the amount of food and compaction Zane is getting. They say they haven't ever seen this severity of food problems with an alveolar opening before. The other issue is that we think it's very likely there's a second opening. They are reluctant to confirm because it always has food in it and so they can't get a clear view, but it seems like a given to us, especially based on what's happening...it's just logical.

Because of the food issues, Dr. S wants to go back in for another surgery in three-six months to close the hole(s). In the meantime, we are going to pursue fitting Zane for a dental appliance that will cover the openings to help with the food issues.

On a high note, we said goodbye to the nose stent today - hooray! We're just about at the three month mark from surgery and with the infection, it isn't worth it to wear it out until the 8th. Bye-bye nose stent - we will not miss you!

Thank you for your prayers!